We want your questions for the live stream!

This may be out of your capability to do or interest in doing. However, when my wife and I had COVID at the same time. It was very difficult for her. Especially, since she has had the same job for over 48 years and always on the go. I was able to take care of her only with the assistance of Methylphenidate. It cleared the brain fog I was experiencing from COVID, and gave me what temporary energy I needed to function. It took her longer to get over the symptoms than myself. I have Type 1 Diabetes and ADHD and believe without the Methylphenidate I would have been in worse shape. Blessed be to you and take care.

Martin Sullivan

Foolish me! I told myself to set a reminder on my calendar for the Livestream, but failed, and, so, I missed the entire broadcast. I did watch the shared shearing short you posted not too long ago. It was wonderful to see Dianna alert and interactive again and I thought the new do rocked too. It’s amazing how you two are handling this uninvited pest, but it makes me optimistic that this episode can be over with sooner than later. It’s a dream, but possible.

Richard Smih

I just want to say I was crying tears of joy and sadness at various points of the livestream. I went through the full range of emotions. To see Dianna and Kyle smiling and laughing made my heart explode! And I was so emotional just about the amount you raised! Bravo, well done, I am sooooo so freaking proud of this livestream. It's such a success and I am so hopeful about the future for you guys! <3 Sending SO much love!!!

Rose V

Wear. A. Mask.

Centralperk

Long Covid is not contagious. 16-23M Americans have it

Centralperk

i wonder what colour she would like to dye her hair if she is able. i`m going to dye my hair soon and maybe i can go for the colour she like.

I. Mennings

I have ME/CFS. It started in 2002. Your live stream shows how our lives are impacted in real-time. I'm homebound since 2021. I just discovered #ME. They led me to your livestream today. I've watched and listened all day. Thank you for your truth and for bringing others who contributed their expertise and experiences. The information is essential. I can't contribute much, but I subscribed today. Thankfully, your stream resulted in a total contribution that will help you. I'm a 75-year-old widow who has been on retirement disability since 2005. I wish I had more funds to contribute, but I send you both my compassion, empathy, and love. Kristine

Kristine Lind

I wonder is why is a virus of any type so destructive like this without medical intervention and the ability to have somebody care for a patient which is what the natural world presents. How is it advantageous to be so destructive as a virus? I would think, from a evolutionary standpoint, that it's not particularly useful and therefore would be very rarely, if at all presented to a population, regardless of the species. It's not possible to draw any conclusion from that thought. I mean what's in it for the virus? Is it just Mother Nature being a little too experimental and the virus doesn't know the negative impact it's having on the host? Clearly it's not trying to be symbiotic. Perhaps the higher incidence of viral diversity is a function of the larger world population coupled with our ability to have better medical outcomes whereas in previous centuries viruses like COVID would be contained to local areas by virtue of carriers not surviving and the inability to travel as quickly and as far as we do today. From an evolutionary perspective, I'm still curious as to what's in it for the virus? I suppose their just too simple to have a motive. Anyway, good luck Dianna and everyone else who has this disease. I wish you all a speedy recovery.

Jay Kean

watched the livestream all day, so so moved <3

Ivy Tara Blair

My daughter had a virus in about 2008. She is 25. It took her a while to get over the initial virus. Since then she has had migraines and has been since diagnosed with POTS, which is now often diagnosed as an associated symptom of long COVID. I wonder if the virus she had was SARS type and therefore COVID like? Perhaps her POTS and chronic fatigue syndrome, the symptom of kind of crashing after a lot of exertion is related to that virus too but the difference is severity so detecting SARS like and COVID like viruses in the population is, I think, going to be critical to avoiding people getting Long COVID in the future. The best way to avoid getting the debilitating effects of Long COVID is to track and avoid getting COVID like we do to avoid the impacts of hurricanes and other severe storms. Hindsight for sure for folks like Dianna, but limiting or eliminating people who get a long-term type COVID diagnosis will help those with Long COVID by reducing the stress on the healthcare system to care for those patients. One could argue that the more people get it, the more it will be researched but I think that's a horrific thing to wish for.

Jay Kean

INCREDIBLE live stream and fundraising today!!! Sorry my brain is broken from long covid…. Is there a PO Box where I can send Dianna mail? 💜

Centralperk

GREAT JOB, team Dianna!

Perry Berryhill

Praying for Dianna. God bless both of you.

Dragon Grandpa Gamer

I agree. The cynical me says there's no money and cares, but it is the likely fix to this and other maladies that we continue to treat the symptom rather than finding the cure. I believe it's possible South the CISPR technology will revolutionize cures versus treating symptoms but the only model that can support such a approach to treatment is national healthcare. If there's no money in it in the long-term, it won't get developed. America needs to be the investor not hedge funds. We spend billions if not trillions on medical care. It's time to change the dynamic. It'll be cheaper in the long run to search for cures. But that won't occur if investors are the only thing driving that investment in healthcare. The Open Medicine Foundation sounds like a good approach. Maybe stem cell treatment would be a longer goal, if not a better goal to try to treat this. I hope, whatever the approach, it's quicker than past drug trials, for whatever, so that these folks can get their lives back.

Jay Kean

Was diagnosed with POTS a few years ago, have never had covid but I still have PEM. Hearing about PEM being physical instead of a matter of character is so incredibly validating for me. I appreciate you doing this stream and providing so much valuable information!

BNN

Thank you so much for the live stream. I learned so much about what she's been going through for well over a year. and ME/CFS. Much love to Dianna, Kyle, and her entire support crew.

Charles Aukai

What are you doing to control the enviromental variables? Air filter, humidity, UV, ect. Also do you think that your current living situation is the best for Diana, in terms of apartment/condo vs detatched single family home?

Shelton Strickler

Kyle - So you're not at risk because the covid she had she's over?. She just now has a non-contagious condition?

Jay Kean

Has there been discussion on how Dianna protects against muscle atrophy? Much love to you and Kyle, Dianna. I can't wait until you're making videos. Not just because your videos are great but because it means you're healthy and recovering.

David Strome

I've had the stream on for most of the day today, I'm super happy that the stream was able to hit the goal so fast, and then even make it past $100k later on. I really hope this helps push things in a positive direction for both awareness and to find a viable treatment. The stream has been very informative and interesting to learn more about the day to day and hearing from experts on it. I am happy that you have a supportive husband and friends to help you through this. I wish you all the best.

Dale Frolik

Does Dianna know how she got covid? The question is not accusatory. It is to simply to understand how perhaps, in retrospect, it could have been avoided for future pandemics and such.

Jay Kean

This feels like the future of medicine. Bringing diverse parties who usually remain separate together for a more holistic (real) picture. The mix of people and range from serious to emotional to fun laughter helps make this easier to understand.

Stephanie Sullivan

I hope you all do realize.... that you have more than 10 times the support you imagined earlier.... we've smashed the 100k, and I believe whole heartedly... could do 250. @kyle and Dianna.... we really do care about you both, and wish we could really do something substantive to help you.

Justin Hicks (Thecyclingeconomicsdoc)

This is what I wonder... how do you mentally pass the time. This is so isolating. Also, my prayers go out to you @ylan

Justin Hicks (Thecyclingeconomicsdoc)

Ian coming in and immediately dropping an F-bomb is exactly what I hoped for. Need a little chaos to break up the seriousness. I am the sliver of a venn diagram that Ian thinks doesn't exist.

EnthusiasticOwl

it's interesting to hear Dr. Putrino talk about pacing.. because that totally applies to helping aging parents. They have limited energy stores and you just have to plan around what they CAN do in a day/week (shower, walking, doctor visits, etc.). So many parallels. thank you

slugbiker

Sending Diana lot of love and I hope she gets well soon! And holy moly Ian the smosh man is here!

QuasarChaser

I imagine it might be too late, but can we get info on these delicious pistachios?! Pistachios have been one of my primary foods, so would love to hear about the most delicious ones

Michael McIntosh

And it would make Long Covid much more extreme, like Dianna is experiencing.

Jenna Foy

Diana, my heart goes out to you and to all of us. My question is., how do you survive the mental anguish, When you are unable to move. Deeply personal question.. don’t expect an answer. Just trying to make it through myself. Sending love and caring to you and your sweetheart. I had my last healthy day sometime early in July 2022. Long COVID MECFS

Ylan Roy

Thank you so much for this stream. Thank you for being comfortable talking about the impact of menstruation. Thank you for advocating for additional research into medical conditions in women. Thank you for sharing your wealth of knowledge and directing viewers to experts. Thank you for finding the balance between sharing how impossibly awful this is while emphasizing the bright spots in your days and ways that others help. "One of the most important decisions you're ever going to make is the partner you choose, and Dianna chose well" <- straight facts.

Elizabeth A Rosendale

How's her sleep? How has it been affected?

Alex_dlc

Ed Yong has said that PEM from ME/CFS is "the annihilation of possibility." Dianna in her way is showing that this need not always be so. Her courage and perseverance, as well as Kyle's, will see them through. Proud to be a patron and to donate to OMF today.❣️

gregg r

I'm curious- Has Dianna ever been tested for immune deficiency? I know that immune deficiency often leads to immune disfunction where your immune system attacks different parts of you body.

Jenna Foy

In general, are you guys looking for/ open to new treatment ideas from the community? I'm sure you have tried so many different things already.... Every time Dianna pops up in my feed I end up doing deep dives reading medical research papers, etc. Looking for ways to solve this... But not sure if she has tried some of these yet or even if you're looking for things to try at the moment. Would love to help, Lorenzo's Oil style, but also want to respect y'all's preferences.

Tom H.

Yes, so sad, and a clear motivation to establish the ME/CFS Collaborative Research Center, which recently had a global summit. A lot of ME/CFS experts brainstormed about the latest findings and next steps. I presume there will be papers published, but they work with patients to gather data, etc. When anything new emerges, it may come from such a group.

UnexpectedBooks.com

I'd be curious to know this as well. You might want to look at the following piece by a science writer: https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/

Dev Sinha

The hug 😭

Charles Aukai

AI requires large amounts of data. ME/CFS is massively under diagnosed, and is complex enough that it would be hard to gather consistent data. The main source of knowledge is doctors who have looked after these patients, in some cases for decades. Dr. Kaufman , who spoke, is one. The ME/CFS clinician coalition (google it) has a wealth of quality information. Going from what they know (e.g. LDN for brain fog in many cases) would be a good overdue next step - one which OMF is taking. But there are many other similar steps.

Dev Sinha

I developed severe vestibular migraine in Jan 2022 and I am still struggling to get better. Hearing you talk about the Stockdale Paradox immediately brought me to tears (ugly crying actually) because it’s the first time I’ve heard others put to words the only thing that keeps me going. Things are really bad right now. I was better for a while but I’m back to like 28 migraine days a month. But I’m going to get better. We’re going to get better. Please tell Dianna for me that, from the heart of one very sick person to another. I believe that we will live again. Also Dr Ravens words were so encouraging. Thank you so much for all of this.

Cyanomys

thank you for doing this live stream. many of the things you are discussing apply to people way beyond covid/mecfs, so it was gratifying to hear you discuss ableism with dr. raven. and, we all need a few tears to help us through the day.

slugbiker

For goodness sake ... fuck covid

FnLn Steve Indiana

This live stream is beautiful. It's an honor to spend time with you, Dianna, and your family and friends. I hope and believe it will meet and go beyond the goals you set for yourselves and this community.

Stephanie Sullivan

What's Kyle's take on The PACE Trial and the excellent work David Tuller has done on it?

Arthur

Q. How are you maintaining Dianna's weight through out the months?

John In York

What goes through Dianna's mind, or what does she think about as she rests? That would be SO hard for someone that has always been active and learning.

Daniel King

Man all the hateful comments are infuriating

Cyanomys

Long Covid and ME/CFS clearly affects more than just the patients. How have you grown/changed in your time as caretaker? What can we as individuals take into our daily lives, where people may struggle with debilitating ailments and traumas beyond Long Covid?

Kevin McDonough

What books are in the mesh container next to Dianna?

Justin Hicks (Thecyclingeconomicsdoc)

They are turning them on and off, depending on whether or not they are taking questions

Michael

Doesnt do anything, I havent been able to ask a single question

Jason Andrew

How are they getting comments and questions? I havent been able to ask a single question because its been disabled the entire time

Jason Andrew

BTW; It took almost an hour for me to write the above chat ... LoL

Perry Berryhill

Hello, Team Dianna. I am sick too (not to the same degree as the incredible Dianna Cowern). I started following physics girl about a year and a half ago . . . I wanted to introduce myself as I believe we may be walking same path. BACKGROUND; I was an energetic "Digital Media Developer" (Software development, Hardware engineering, Internet Protocol Broadcast and virtual technologies). Now I am only shadow of what I once was . . . My initial infection was approximately 4 years ago, afterwhich time I began to struggle with a host seemingly unassociated "issues". As the months progressed, my condition became increasingly more complex with secondary symptoms & issues arising from [that] single infection of the original Covid-19 virus. I now have a new challange that has become my Life's Work and Mission . . . "Health & Wellness for those that suffer with Viral-induce syndromes," such as, Dysautonomia, Myalgic Encephalomyelitis, CFS and Long-Covid. My QUESTION; How are you Accessing, Gathering, Compliling and Storing your Vital Statistics and Experiencial data? ~ Excelsior! perry

Perry Berryhill

Just a thought to maybe play one of her short ‘Physics Girl’ videos to show Dianna ‘before’ Covid?

Rick Lyell

Thank you so much for this day! My Family is watching thé live!

Julie Lamarche

I naively wasn't even thinking about that side of things. Ugh, you're surely correct.

Justin Hicks (Thecyclingeconomicsdoc)

It seems live chat was just activated.

Ola Hammarström

Question for Kyle: As main caretaker how do you make sure you have time for yourself and not disappear into the role?

Larry Lo

Felt I needed to join patreon for continued support but also as a think you for amazing content that's free. (Looking at you Rodney Mullen) 🤘🏼

Michael

Refresh the page.

Michael

Has anyone tried to use AI to figure out all these long covid interactions?

Dean White

How can someone ask question from her youtube page?

Julie Lamarche

A question from some ME/CFS suffering chat contributors on youtube is if you can share the interviews as separate videos on her youtube channel later :)

Cleverly Blonde

Can you talk about her bed situation and what they tried.

Amy Soden

I just joined Dianna's Patreon and I donated on her GoFundMe months ago. I may have me/cfs, and have a question. My CBC is all normal except for Immature Granulocytes %, which varies from 0.9% to 1.6%. The lab where it does shows a range of 0.0% to 0.4% as normal. My PCP sort of blows it off. Was/Is Dianna's Immature Granulocytes % normal?

MarScience

I was hoping to chat on the live stream... all of us Physics-girl-ites are collectively cheering for her!

Justin Hicks (Thecyclingeconomicsdoc)

Oh goodness, yeah, I get significant solar urticaria in the Sun.

Kim

Have the doctors looked at any correlations with undiagnosed/underlying auto immune disorders like lupus, fibromyalgia, etc.?

Amy B

We saw recently here on Patreon that Dianna got a cervical MRI, to check out the possibility of craniocervical instability. Is there any more news on that? What are next steps?

Dev Sinha

I saw you already answered it on the stream, thanks

Foxter55

Where do I donate? I can't find the donate button on the Youtube livestream? Btw really amazing Dianna and Kyle and their friends are organising this fundraiser <3

sebastian aminoff

Are you aware of this research from Switzerland which found the or one major cause of Long Covid? https://www.science.org/doi/10.1126/science.adg7942

Raphael Huber

Is Diana on any medications? I was reading an article on Scientific America and was curious.

Robbo the Hut

Is Diana experiencing any neuropathy along with her other symptoms. And if so is there anything that specifically helps with that symptom?

Jessica Bisel

For when she feels better she does more. I have a physics question. If you have a solar sail pushing a craft and you tilt it, does the force vector change? Basically can you make a solar sail that orbits in the path of the Earth on its own power?

Dean White

I am worried about bed sores for people who suffer from this. Are patients able to move on their own?

Foxter55

Big thanks to Dianna and Kyle for this stream for revealing personal things for good - for support of research which has goal to help to all people suffering this strange health issue. The stream is also good for broader society from more detail information point of view about long covid. Healthy or sick, Dianna supports science all time ❤️

Ondrej Grulich

Live streaming is such a great idea. Even for a short, and limited amount of time, can interact with both of you. Thank you 🙏

Dana Latta

Watching it now… the interview with the dr is informative. Obviously we need more research!

Foxter55

Will the interviews be available as standalone videos after the livestream ?

blacia

Oh my goodness, thank you for sharing your experiences. That is horrible.

IT Ninja

Have we learned anything new from the MRI data?

Jeremy Hicks

What could you use More of? Is there more we can do?

John Truax

Simone! Dianna needs an energy robot!

Dean White

As a caretaker for a severly depressed wife, I know how hard things can get. The moral hitback is enormous and sometimes we as caretakers need to be taken care of as well. The mental fight is huge but the hope of things getter better soon is what makes us persevere. Goodluck brother.

Rachad Koaik

I just subscribed for the first time to Patreon to help getting her better and on her foot sooner than later. Love from Morocco

Rachad Koaik

I just want to say that I do miss her video's, it is so much fun to learn from someone who is so passioned and has such an awesome personality and smile.

BrainlessSteelNL

I couldn't donate on the livestream(From Denmark), so became a member instead. Hope you'll improve soon!

Thomas Eg

I wanted to ask about large doses of Vitamin C. It's a very important anti-oxidant, histamine scavenger, and necessary for the production of collagen. In addition to the other anti-oxidants -- Vitamin E, Coenzyme Q10, Alpha-lipoic Acid, Quercetin. And is there any info about Serotonin antagonists like Benadryl and Famotidine (Pepcid AC), plus avoiding SSRIs.

LK

I'm from Australia and can't donate, so I figured why not become a member.. It's the least I could do

Kyle

Hey, a have people in Australia that say they can't see/donate to the fundraiser.

Suzanne Strickland

The livestream is so moving to watch <3 I also have LC (after a lifetime of cfs, my immune system was primed to flip out), and it is so hard not to look away...it could be any of us, but for those with already existing autoimmune it's scarily more likely. Thank you so much for opening up your home & experiences to the world, it's brave to ignore all the meanness in order to educate so many more ❤️🧡💛

Ivy Tara Blair

I hope the livestream will not be too exhausting for Dianna, even if she's trying to rest during it.

blacia

LC/ME itself causes muscle degeneration, on top of being bedbound. 4.5yrs with it as a former athlete, even when I wasn’t bedridden I couldn’t put on muscle to save my life. It all has disappeared.

Centralperk

Additionally, what do you do when you feel hopeless? How do you keep on going?

Toaster

Severe LC/ME patients either have someone help them to the bathroom and to even sit up on the toilet, crawl if no one to help. Many use a commode, or a bed pan, and receive help for that as well.

Centralperk

4.5yrs severe LC/ME. 37yo. A crash is an extreme exacerbation of symptoms precipitated by a very light, normal activity for a healthy person. So I’ve had the flu 24/7 this whole time, but in a crash the flu becomes 10x worse. The body pain is excruciating. More light, sound sensitivity than usual. More migraines than usual. More fatigue than usual. All these things are already debilitating for me daily, but in a crash it’s exponentially worse. The activity that causes it can be impossible to predict. And it depends on how severe you are. Earlier in my illness, i would crash after a night out at dinner with friends. Or if I tried to work out lightly. Or if I had to travel for work. It all made me much worse each time. So then there were years where I lived in a crash bc even having my mom help me to the bathroom would cause it to get worse - I probably should have gotten a commode or bed pan. Or sitting up long enough to eat would make me worse. So instead, I’d lie in my bed and my mom would feed me bites of toast. To avoid a crash.

Centralperk

What helpful tools have mental health professionals given you (Diana and Kyle)?

Toaster

I’ve had LC/ME for 4.5yrs. For a year, sunlight would send me into a physically torturous crash. Pain was coursing through my bloodstream. Your body physically can’t handle it. You can get prescription level vitamin d etc to combat that issue, rather than cause a crash by getting sunlight.

Centralperk

My mom had to help me to the bathroom when I was bedridden with LC/ME and when I’m in a crash still. We almost got a commode to have by the bed. Many severely sick LC/ME ppl need to use bed pans bc they can’t get up or sit up themselves long enough to go to the bathroom. So yes that requires help.

Centralperk

Ron Davis’s son has been severely disabled with ME for at least a decade. Currently requires a feeding tube and can’t speak.

Centralperk

16-23M Americans developing LC/ME after Covid infection isn’t enough?

Centralperk

I know some ppl it’s helped temporarily (not cured) and some it’s done nothing. More research needed.

Centralperk

I got Covid March 2020. Long Covid/ME ever since. As have millions of others. Dianna has said clearly that she got Covid, and never got better. That is all you really need to know to see what the problem is. Covid is an unprecedented, multi-organ system attacking, immune system destroying virus. Everyone getting sick in summer? Bc repeat covid infections are chipping away at our immune systems. Increased reports of heart attack, stroke, and diabetes? Bc covid wears down the endothelial lining of our vascular system, among other reasons. The data is there, but MSM and govt would like Covid to go away so don’t report on it. It’s doing long term damage to your body even if you aren’t getting long covid. Expect lifespans - yours included - to be lowered significantly by this over the decades.

Centralperk

I'm sorry if my tone didn't come across properly. I tried to make it clear that I wasn't implying the disease is just "laziness", but I must have not been clear enough, and I've upset you. My question was more about what the path to recovery might look like. If at some point the problems change from being "cause-based" to being "effect-based", then even if the underlying cause heals, the body system may still not recover. So my question was more about how it's possible to transition out of this state, and if it's possible to tell the when someone has crossed from one situation into another. I'm sorry if this implication came across wrong.

Christopher Vollick

Solve ME and MEAction are two fantastic nonprofits that do a lot. Solve ME has an advocacy week yearly where you can virtually meet in groups with Rep and Senate aides to plead for help. MEActjon does incredible awareness campaigns. Having healthy person help is important esp for this disease bc these patients are healthy enough to advocate for themselves. Unlike many other diseases where you see those patients able to take action and raise awareness.

Centralperk

Usually music is too much for severe ME patients. At my worst, I couldn’t even tolerate gentle music on the lowest decimal. My brain would hurt and my entire body would ache in pain. Neurologically it would destroy me. Kind of like TBI sometimes.

Centralperk

There some evidence that having had Epstein Barr virus ever in your life could make you more susceptible - it’s recently been linked to MS. I had a mild case of EBV as a child. Otherwise spitting image of great health, athlete, 33yo. Now 4.5yrs severe LC/ME.

Centralperk

On a cellular level the mitochondria - the powerhouse of the cell - the battery of human beings - is broken. Not to mention the neuro problems much like a TBI. You wouldn’t say this to someone with a TBI would you? You wouldn’t say this to someone with MS, ALS, or Parkinson’s would you? I only say this to point out there are socially more accepted understanding about the progression and difficulty of those illnesses, but LC/ME has been stigmatized. So ppl think it’s all deconditioning. It’s a cellular, neurological, multi-organ system DISEASE. Severe LC/ME has been confirmed by scientists to be on par with someone’s final days of cancer or AIDS. Except it last years, decades. You wouldn’t ask someone in their last couple days of cancer to walk around the block.

Centralperk

As a LC/ME patient myself, I know several people who have tried stem cell therapy domestically and abroad. None of them got better. Some got permanently worse. I agree, more research is needed desperately bc theoretically it seems it could be an option worth exploring.

Centralperk

Employer-sponsored disability insurance to begin with…

Centralperk

On a cellular level - the mitochondria is the powerhouse of the cell - the battery of human beings… on a cellular level ppl with LC/ME are operating with like 10% battery 🪫. The mitochondria is broken. Physically you just can’t move like a healthy person. And when you overdo it, it will make you MUCH sicker, sometimes permanently, as is the case with Dianna. Hopefully a treatment works to pull her body out of it, but it’s all experimentation at this point bc the govt has grossly underfunded MECFS research for decades.

Centralperk

Really hard to put that on your role model when they’re living in a torture chamber every day…

Centralperk

In case this doesn’t get answered - yes there are similarities in the approach of rehab… I’ve heard of long haulers going to TBI clinics and treatment centers for help. It also feels like you have a TBI in that cognitively you aren’t functioning at capacity, it feels like your brain is broken. Hard to concentrate, talk at normal speed, find words, remember things, stay organized, manage basic elements of daily multi tasking. I’ve made costly mistakes on my bills, hit parked cars, etc. And you are very sensitive to stimulation - light, noise, sound, air on skin, socializing, etc. Scientists have found evidence of brain damage after Covid, but not across all patients. Nevertheless, the symptoms I describe are fairly universal. 💙

Centralperk

Just so saddened that you all are dealing with such an immensely debilitating disease that most don't know a thing about. When you have a zebra, it's so difficult to get treatment and remain positive. From there stems my question: how do you remain positive (the whole team)? What gives you all a sense of purpose given this new path in your journey?

Justin Hicks (Thecyclingeconomicsdoc)

> The Visible app does about as good a job as anything out there for symptom and energy management, but it's not perfect. May I ask what issues you have with that Visible app? There's no perfect system, but I really want to hear what your thought of what a perfect app for this case is. I'm really interested in making a small app in my free time to help with this issue. Still trying to understand the limitation of whatever available out there and what's needed. At the same time, I'm also not that great of a developer myself. So I can only do what I can do.

Davuth

Thank you for this extraordinary effort to raise awareness about Long Covid and ME/CFS. There's a very active group of "Covid Conscious" or "Covid Thoughtful" people on Twitter, and I will make sure they know about the livestream. It's really thanks to them that I understand a lot of the options out there to prevent Covid and to deal with Long Covid (Michael has been diagnosed with POTS and is seeing a cardiologist, and is on a waiting list to get into the USC Long Covid Clinic). Question for Dianna and Kyle: If you could pass a message on to this highly motivated group of people on Twitter, what would it be? We're tired, we're sad, we're angry, and it would be a great thing if we could marshal our energies in a united way to make things better both for the people avoiding getting infected or re-infected, and also for the ever-growing numbers of people with Long Covid. Question for the doctors on the Live Stream: Michael is still testing positive by FlowFlex RAT (positive since 12/27/23) but negative by PCR and Plus Life. We think this indicates a viral reservoir (gut or brain or...). Any success addressing a viral reservoir with antivirals or other? Our unmasked GP is not interested in helping at all, he is SO FIRED. Dianna and Kyle, we are keeping you in our thoughts daily, and we will see you on the YouTube on Saturday! ~ Kim & Michael Harrison, your friends from Socratica

Socratica Studios

Do you have 24/7 help? Did Kyle have to stop working? Do you have psychological help? During the day, do you sleep? What proportion of you sleep vs. are you awake during the day? I send you love and courage for the future Thank you for showing people this horrible disease

Julie Lamarche

> "The gps location would help if I wondered if I had left the house that day when looking back at the data." When I first got sick I started planning an app that did something similar to this. It also included elevation and heart rate data, so you could see as much data as possible and start identifying triggers. At the time I was still working and wasn't able to find the time and energy to work on it. Now I'm no longer able to work and have all the time in the world but don't have enough spoons to do it. Hence the no longer working part 😅

Michael McIntosh

What is the motivation for the live stream? Is it to promote knowledge of the condition? An update on Diana's condition? Do you feel it is necessary to keep making content? I think the volume of people still supporting the channel speaks to that not being the case. I think a lot of people are very happy with the motivation she had inspired and the content she has created. I think they're supporting her for what she has already done. Has support decreased?

Eric Jensen

Many people have experienced many different levels of symptoms from the pandemic, how can the medical profession communicate clearly with those who dismissed the severity and tragic results of COVID. Every person can have a different responses to disease and their environment. I think sometimes people are blamed for their experience with a disease. I know for me. I have to manage my environmental allergies almost daily. They create headaches, body aches, and a bit of a foggy brain at times making it tough to focus and think at times. Many may offer solutions or dismiss the severity of the issue as 'minor' or the person did something wrong. Also, how can we communicate the direct connection between mental and physical health. One interacts directly with the other. Thanks As always I wish you the very best during this tough moment! I am looking forward to seeing you sharing your amazing knowledge again very soon.

Kurt

This YouTube channel is great for the current research on CFS. https://www.youtube.com/@UniteToFight2024

Alex Taylor

Here is another site. Their videos are great. https://www.youtube.com/@UniteToFight2024

Alex Taylor

With my CFS the speed of information from videos or tapes is a problem. So I will listen for a couple minutes until my mind can’t keep up anymore. Then I rest for an hour and listen again. I really enjoy listening to technical things I already know but has a single new pice of information every couple minutes. Neil Degrasse Tyson is great to listen to for me.

Alex Taylor

Here is a YouTube channel that can help answer that question. https://www.youtube.com/@UniteToFight2024

Alex Taylor

I can’t talk for Dianna but I have had CFS for 2 decades. Here is my definition of a crash. I normally have the energy to wake-up get dressed and teeth brushed. Then sit on the couch for 5 hours watching educational videos before my wife is able to drive us to dinner somewhere. After dinner I go to our bedroom and watch 4 more hours of video’s before trying to go to sleep. If my wife and I leave the house in the morning. I ride my mobility scooter for a couple hours. Go to lunch and then dinner. I might crash. If I crash I will be in pain the moment I wake up the next day. That pain makes it almost impossible to get dressed. So I have 2 choices. 1 stay in bed all day and ask my wife to bring me a protein shake for dinner. Or I take some Oxycodone so I can get dressed. But that just deals with the pain. My fatigue gets to the point I loose strength. I can’t lift a milk carton without dropping it. Using silverware is extremely challenging. I either skip dinner all together, which is the 1 meal I usually eat, or I get a straw for my drink, because I can’t pick it up, and I eat really slowly. So a crash for me is all my symptoms increasing 5 fold for 2 days to 28 days. Pain, fatigue, muscle strength, fogginess of the brain, short term memory problems.

Alex Taylor

I was just watching this video and it is the first reputable person I have seen talk about post vaccination syndrome. https://www.youtube.com/watch?v=H9jj7Hs_FJU It was at the 21:45 mark. I hope they are able to get a clinical trial to help people with pvs soon.

Alex Taylor

Thanks for the warm thoughts. My wife and my dad have been such great helpers in my life. I am also blessed with enough money I pay someone for 6 hours a week to help with cleaning, laundry, food prep, and small projects. This is not the life I expected but it is the life that I enjoy. 😊

Alex Taylor

I have CFS and was diagnosed with mitochondrial dysfunction over a decade ago. I agree completely with your explanation. Medication tracking apps. Visible is ok but they have their opinion on when things should be tracked. They have you register each evening if you had a migraine that day. That is not useful to me. If I wait till the evening I might not remember what symptoms I have had. Plus it doesn’t allow me to register multiple migraines. So an app I would like would definitely have the following features. First screen when opening the app would have buttons the user creates. A single click on a button would register either the medication or symptom they configured and what time it was registered. A gps location would also be nice but not required. The gps location would help if I wondered if I had left the house that day when looking back at the data. It would be great if those buttons were available without having to unlock the phone but that is not necessary. There is a special medication reminder case no current app offers. A reminder only after you take a medication. I do not take oxycodone every day. But if I do take it I would like a reminder 4 hours after the first dose. I would click the oxycodone button registering that I took an oxycodone at 2:27pm. I would like a reminder at 6:27pm to automatically be set when I click the button at 2:27pm. I would like the reminder to be a custom message. Like “How are you feeling, you are now allowed another Oxycodone if you feel you need it.”

Alex Taylor

Yes. Now Once you have had long covid fatigue for a certain amount of time, I think 6 months, they diagnose you with CFS. So yes she has CFS.

Alex Taylor

I have had CFS for 2 decades. I have found a couple good cbd creams that work fantastic as a topical treatment for acute pain

Alex Taylor

No questions. I just wish you strength. And Dianna: Short hair looks great as well!

Marco H

I asked this question now as it could take a little time to assemble an answer that could be shared during the live stream. It's a heads-up question.

Donald J Arndt

"The question that can't be asked"... 🙄 About 1 to 2 % of people who had a COVID infection suffer from severe Post COVID syndroms like ME/CFS. 0,0036% of vaccinated people have severe and lasting complications.

Judith

From her videos in the past, I always assumed that Dianna has a very active and creative mind... I also assume that these days, her mind is not running at even remotely that speed. But I am sure that her curiosity remains unchallenged. How does Dianna keep her mind active and avoid terrible boredom? I remember seeing the timelapse of a day in Dianna's life not so long ago... and bedsores aside, I couldn't stop thinking about this... For the doctors in the room. My sister also suffers consequences from Long COVID, nothing as serious as Dianna's conditions and doctors keep treating the symptoms when they appear, but can't seem to find a way to treat the source... so my sister ends up taking some new medication every now and then, but never seem to be able to finish with the whole ordeal... Why is it that this virus has so many different effects in people and we can't seem to be able to solve it? I imagine that lack of funding is a thing, but what can we, as individuals, do so there is more research and advances on the topic, so people like Dianna can recover her life?

Enderbeats

As a once in a while patron commenter, what can we do more of and what can we do less of? And how can we best help ensure we're helping other participants do the same?

Keith D.

To be clear; I beleave that COVID can cause long COVID, probably due to reactions with the spike protein it produces. That does not mean that the same spike protein produced by the vax did not harm people. The news is repleat with false naratives. Beleave what you want. My question was for Diana, based on her first hand knowledge of her case.

Joshua C Wilhour

One only need remember, or search the news to find numerous reports of people who recovered from the initial COVID infection only to carry on with severe symptoms for months after recovering before any vaccines were available. It wasn't called "long COVID" so you won't find anything if you're looking for that term.

Keith D.

Alyssa and Alex, you guys are amazing! My heart is with you and I hope for the best for you guys too, right along with our beloved Physics Girl and her family and friends and helpers. Everyone who keeps you guys going reminds me of Mr. Rogers and his "always look for the helpers. You'll always find them" talk. The helpers, and the people who need help and do whatever their best is to make something with it are the real heroes in life. ❤️

Keith D.

Those are some good questions. I hadn’t thought about bed sores but I suppose it might be a problem.

Cyanomys

This. All the people asking if she’s tried faith healing are driving me insane

Cyanomys

I’ve also tried gabapentin! I wonder if the new CGRP migraine drugs would work for CFS hmm. Probably too early to tell and frankly impossible for patients to pay for unless it gets FDA approval and insurance coverage anyway. I’m about to delve into nerve stimulation devices and possibly TMS too. Which are barely even research for migraine let alone other stuff. So much we don’t know

Cyanomys

Apologies if this question has been asked but can Diana endure physical touch, as in a hug, or brushing her hair? And if not, what other sensory input does she enjoy? If she can endure physical touch, is there a time limit for such engagement? I crave hugs from my partner and use those as a salve for my soul, I'm wishing Diana and the whole team virtual hugs for life;)

MsCheree

How is Kyle doing as main caretaker? Is he getting a chance to take a break from his hard work taking care of Dianna? I know that Dianna's condition is serious, but caretakers are important too!

An Vu

My question is about rest. It strikes me that one of the things everyone involved in this journey has had to learn is how to rest, and rest well (something I *really* struggle with). What have you learned about quality rest from this experience?

Lex

I want to start by letting Diana know that her community loves her and is pulling for her recovery. We need people like Diana in the world! Ok, now my question. Have you adjusted to the shorter hairstyle? It looked heartbreaking to watch you cut it, because we could tell it upset you, but for the practicality in the time being, it’s a good thing to do. You’re beautiful no matter your hairstyle, don’t worry!

Mike Noodle

I do a meditation that I call learn to ignore things. I get my self into a reasonably comfortable position. Then I start counting down 100 breaths. Once I start counting breaths I acknowledge any sensations I have but I don’t respond to them. If my foot starts to hurt I speak in my head, well my foot is hurting now that’s good to know. Usually without moving the sensation goes away in 10-20 breaths. The main things I’m learning to ignore is random pain and random nerve sensations like itchy nose or leg or something. Usually when I get to zero I don’t have any sensations left that I have to deal with. It has been a great exercise for mental strength. Allowing me to only respond to the things I want to. It has made ignoring social media alerts much easier

Alex Taylor

Is there a relationship between CFS and TBI?

Don Bright

How does Dianna or her team deal with the lack of mobility - bed sores, muscle loss, etc? Dianna, with how active your mind and your imagination have been, how are you handling this mentally? Kyle, how are you managing through this? I know Dianna is the center of your universe but I hope you understand “self care” because you need it and Dianna needs it for you. Finally, I don’t know if either of you are people of faith but I strongly encourage prayer. Certainly many of us are praying daily for you and I hope we’re doing it together across the miles. God bless and take care of yourself”Team Dianna”! 🤗

John Ciavardone

Thanks!

Aaron Bono

Apologies if this has already been answered in a previous video, but what are the symptoms of what you're terming a crash? Does Diana need a ventilator or some other treatment when this happens? Also, is sleep apnea an after effect of CFS/ME?

Cap Pike

Simone and Dianna...two of my YouTube fans! My question is how is Dianna dealing with this or how does she deal with it? Where is the strength coming from? I have a nerve condition that flares up numerous times a day causing spasms and some days the frustration is overwhelming.

Lyle W James

Thank you for sharing this with me. I find videos a helpful way to learn.

Stephanie Sullivan

Tianze Li

What is a helpful thing someone can say? My spouse has a rare and debilitating illness and I know how unhelpful it is when someone well meaning asks if you've tried this or that, or suggests some alternative therapy as if that's never occurred to you. So what can we say or do that would actually be welcome and affirming?

Paul Soderdahl

Why is that the one thing you know? We are 4 years into this situation. How do you know that one thing the media says is true? It seems more like narative than fact The CDC is now admitting how many sudden deaths are tied to this gene therapy. If you have decades with this, very obvious you have a different cause than covid or vax. It seems a lot of cases recently only showed after the shot was onboard. Very sorry for the symptoms you suffer, but my question still stands. Very likely there are several things that can cause similar symptoms. Autoimmune, lime desease, zika .. etc. This does not mean that covid or the vax don't as well. Science dies in silence, when fear is the word.

Joshua C Wilhour

PT can be a sensitive topic in the ME/CFS community. For a bit of background, this video does a good job of exploring the issues with the problematic PACE study: https://www.youtube.com/watch?v=bzh8pT-g9v0 This NPR story goes a bit into why exercise is dangerous for Long COVID (and likely by extension ME/CFS) patients: https://www.npr.org/sections/health-shots/2024/01/09/1223077307/long-covid-exercise-post-exertional-malaise-mitochondria Towards the end, they talk to Dr Putrino, who will be part of this live stream. I'm enrolled in his rehabilitation program and have done the PT he prescribes in the past. To give context, I think Kyle mentioned Diana is about a 4/100 on the ME/CFS functional ability scale. I'm currently somewhere in the 20-30 out of 100 range and have been taken off the PT protocol until I can stabilize and improve my baseline. The PT was helpful, but this disease is so sensitive that it needs to be approached with extreme care. Not sure if this is the version of the scale that Kyle used, but for reference: https://www.actionforme.org.uk/uploads/pdfs/functional-ability-scale.pdf

Michael McIntosh

I'm also a dev, though on the backend side of things. Symptom tracking, medication tracking, and energy management are the best ideas I've come up with as well. The Visible app does about as good a job as anything out there for symptom and energy management, but it's not perfect. The bluetooth medication cap is a great idea. I use various daily pill containers so I can generally tell when I've already taken my meds, but even then I often forget to take them in the first place. Battery management seems like the biggest hurdle. I might investigate this if I have the spoons. Echoing the mitochondria info. The way I think of it is that we all have a stockpile of ATP on hand. Some of this ATP is needed to maintain bodily functions like breathing, pumping blood, digestion, and processing environmental information. Additional ATP is then used for exertional activities, like thinking, talking, moving limbs, walking, running, etc. The more exertion, the more ATP is used. With ME/CFS, at least those of us with mitochondrial dysfunction (I'm not sure if everyone has this? I assumed so, but now I'm weary of making such claims), our body is unable to produce much excess ATP above what is required for basic bodily functions. It's extremely easy to then use up any excess ATP held in our reserve bucket. Once we use up the excess, we struggle to produce enough to maintain basic function and our system goes into emergency shutdown procedures. Add to this that, at least in muscles, the cells that grow after exercise are more fatigable than in healthy people. To put that in terms of my bucket metaphor, not only does our bucket fill more slowly, but it shrinks a bit each time we overdo it (link to study: https://www.nature.com/articles/s41467-023-44432-3)

Michael McIntosh

I appreciate the insight, but I hope waiting decades isn’t the answer. In the USA we have wonderful educational and research institutions. The lack of brain power probably isn’t the problem. Must be a lack of resources. I think it’s total crap to not devote enough resources to solve these medical issues that severely limit or reduce people’s lives.

David Golden

CFS and ME. I believe they said a host of other things that appear to be related, but hope that helps.

Sean Hasling

Oh, and did you even consider something like healing? However woo-woo it might seem, check out Charlie Goldsmith's work for instance. It's really interesting. He works with doctors and hospitals and is working to scientifically validate what he does.

Linn Nedergård

Ok so I signed up here once I got to know about Dianna's condition. I wanted to ask have you been maybe researching use of THC or at least CBD to help her nervous system? I know how this sounds but trust me I am not some natural-medicine/weed freak, I'm rather a sceptic. Its proven that it helps with neuroregeneration, and I've seen it help people in various ways, also post-covid, not such bad conditions but still would help with fatigue and brainfog. Maybe that could be something that can help her? That's one thing and other is supplementation with Lion's Mane (Hericium erinaceus) and Cordyceps mushrooms? Those are also neuro system boosters that can just help her start to think like she would again. That's literally only things I wanted to communicate, like a question/suggestion type of thing. Please look into it and consider, it may be just something that will help even a little. I hope Dianna will get back on her feet sooner than we think and I aim to support here with my donations on that way. I hope my message comes across right. Sending wishes of health and strength to Dianna and everyone supporting her over there!

Michał Gonera

Did you try meditation? I've been living with chronic fatigue for 18 years, some days all I can do is watch stuff too. But I find watching things kinda tire me out. Taking a meditative break like just watching my own breathing really helps

Linn Nedergård

Did Dianna try meditation? Is that even a thing that would be possible for her?

Linn Nedergård

Here is a good place to start. https://workwellfoundation.org/educational-videos/

Alex Taylor

I looked at the Visible iOS app. That looks really good. I will definitely track with the free app. We will see if I get the arm band. Thanks for sharing.

Alex Taylor

When I was bedridden for a year what I wanted was the ability to have physical contact with my spouse. Holding hands. Leaning against one another. Without that creating negative symptoms.

Alex Taylor

I have had CFS for 2 decades. Here is my definition of a crash. I normally have the energy to wake-up get dressed and teeth brushed. Then sit on the couch for 5 hours watching educational videos before my wife is able to drive us to dinner somewhere. After dinner I go to our bedroom and watch 4 more hours of video’s before trying to go to sleep. If my wife and I leave the house in the morning. I ride my mobility scooter for a couple hours. Go to lunch and then dinner. I might crash. If I crash I will be in pain the moment I wake up. That pain makes it almost impossible to get dressed. So I have 2 choices. 1 stay in bed all day and ask my wife to bring me a protein shake for dinner. Or I take some Oxycodone so I can get dressed. But that just deals with the pain. My fatigue gets to the point I loose strength. I can’t lift a milk carton without dropping it. Using silverware is extremely challenging. I either skip dinner all together, which is the 1 meal I usually eat, or I get a straw for my drink and eat really slowly. I always have 2 cups of fruit cut up in the fridge. I eat that at night while watching tv since I can grab 1 piece every 2 minutes.

Alex Taylor

That is a great question. Hopefully they pick this one.

Alex Taylor

CFS existed before long covid. Some doctors are now lumping them together. If you have long covid for more than 6 months or so they diagnose you with CFS. https://www.yalemedicine.org/conditions/long-covid-post-covid-conditions-pcc# Long covid has greatly increased the research on CFS.

Alex Taylor

https://www.yalemedicine.org/news/long-covid-long-cold-post-acute-infection-syndromes The information is there but it is by statistics not medical tests. Here is a clip from the article. A recent study published in The Lancet’s EClinicalMedicine surveyed more than 10,000 people who had COVID, another respiratory infection, or no infection/sickness at all. The participants were asked if they experienced 16 symptoms found in Long COVID, including fatigue, shortness of breath, dizziness, memory problems, coughing, and sleeping issues. Those who had been infected with COVID or other respiratory infections were more likely to have new or continuing symptoms more than four weeks after the acute infection than those who had not been infected with COVID or another respiratory virus

Alex Taylor

I must not be up to speed does Dianna have chronic fatigue syndrome/CFS? https://www.cdc.gov/me-cfs/signs-symptoms/index.html

Carolyn H

Interesting research. Thanks.

Alex Taylor

Thank you so much for believing your spouse was truly struggling. Not every spouse can do that. So this is the statement that I believe saved my marriage when I got sick. “Believe your spouse. Even if you can not see their struggles it is important to believe them.” I deal with chronic pain. My wife can not actually see the pain. But when I say I can’t do something because of it she believes me. And I give her the same respect.

Alex Taylor

Caregivers: do not forget to care for yourself ❤️

Carolyn H

The 1 thing I do know. There were millions dealing with long covid before the vaccine was created.

Alex Taylor

Is physical therapy, I'm taking super minor, possible? Like very small goals. Flex each foot X times. Lift leg X time(s)? Would one of Diana's doctors recommend appropriate PT?

Carolyn H

https://med.stanford.edu/chronicfatiguesyndrome/donate.html https://workwellfoundation.org

Alex Taylor

Thank you for sharing your struggles. I have had CFS for 2 decades, and yes I have had those same thoughts. It’s extremely difficult to see the point sometimes. Especially when a crash lasts way longer than expected. The one thing I do is find a single time each month where I affected someone else positively. I think about that as much as I can. This helps me remember I still affect people. It’s so easy to only think about how I negatively affect people. So this helps combat that. But this is not possible for everyone, for multiple reasons. So just try every day to make it to the next.

Alex Taylor

Is Diana able to keep her muscle tone? I know PT must be out of the question right now.

Carolyn H

#5 one of the biggest challenges for CFS research is they can’t test on really sick patients because those patients can not come to the clinic. So we need studies where doctors and nurses go to the patients home. It makes the study extremely expensive. But is something the community really needs.

Alex Taylor

What are some real, impactful ways we can help 1) Dianna personally, and 2) more broadly? If we contact representatives and senators, what should we ask for?

Joanne K

My CFS head pain finally got dealt with by an oral facial pain specialist. One of the treatments is Botox. Yes Gabapentin is used which was originally an epilepsy drug. I am also on cymbalta for nerve pain.

Alex Taylor

If you know anyone with CFS make it apparent that you are willing to go to them and visit. Having human contact from only 1 other persons messes with your head. But if you have extreme CFS you don’t have the energy to go visit others.

Alex Taylor

For someone in her situation PT is not possible. The question then becomes. If someone comes in and moves here extremities for her does that cause a crash or not.

Alex Taylor

I have had CFS for 2 decades. So I have stayed up with long covid research as much as I can. My layperson’s opinion is the inflammation from covid never goes away and eventually damages other things in the body. So if you get covid and recover before the inflammation stage, which starts around day 10-14, then you have a low risk for long covid. It took 3 years before the antivirals were available so everyone before that had a much hire chance of entering the inflammation stage. Now if you are vaccinated and get the antivirals you can kick covid before day 8 which is usually before the inflammation stage. But this has not been verified. So it is just a hypothesis

Alex Taylor

I have had CFS for 2 decades, so here is what I know. Dianna is already having the problem you are talking about. In one of the videos they said her legs have become so weak she can not stand. During my journey I did everything in my power to walk 20 minutes every week. I only had a couple years where I was to weak to do this. Once I could do 20 minutes I paid for it heavily. I would become bedridden for 2 days after my walk. So for 3 days a week I was just focusing on not deteriorating. I am watching my muscle mass using a scale with electronic foot sensors. I am barely maintaining my muscle mass. But if a 5 minute walk crushes you for a month it’s just not possible to do that.

Alex Taylor

Great question

Alex Taylor

I have had CFS for 2 decades so I can give a patients answer. They can’t nail down the underlying cause yet. So they are mainly just trying to deal with symptom management. There are some symptoms that would respond to stem cells but I don’t have any of those that I am aware of. But I’m sure others do and they might find out I do after another decade.

Alex Taylor

I can’t speak for Dianna obviously but I have had CFS for 2 decades. Mine is due to mitochondrial dysfunction. If I push farther that what my mitochondria can keep up with my body bypasses the mitochondria. When this happens I end up dealing with lactic acid. Which causes pain. So after I take a shower I have to lay down for an hour and not move so my mitochondria can catch up. For app development my suggestion is medication and symptom tracking. There is nothing on the market that has the features we need. I built something using ifttt but every time my medication changes it talks me an hour or more to reconfigure things. Also a Bluetooth medication cap is needed. Something that pings your phone when the bottle is opened. CFS messes with short term memory. If I didn’t use a timer cap I would regularly be wondering if I have taken my medication. Search Amazon for timer cap to see a non Bluetooth version.

Alex Taylor

Hi. I have CFS due to mitochondrial dysfunction. I had mitochondrial dna test and it showed I have 2 distinct sets of mitochondrial dna with a 45% 55% split. So I have 2 sets of mitochondria. If you search for mitochondrial dysfunction and CFS there is a ton of research being done out there. My mitochondrial specialist said he is mostly wondering why my body is not destroying the bad set of mitochondria. That being said there is no consensus on the underlying cause of CFS. So the research is still very fractured. Some teams working on one hypothesis another working on others. And some still creating new hypothesis’s. Good luck and thanks for being interested in getting educated on this.

Alex Taylor

Hi This is Alex Taylor from Seattle. I have lived with mitochondrial CFS for 2 decades now. I was bed ridden for the first couple years. Through my journey I have had pushback from doctors when I suggest a treatment that doesn’t yet have FDA approval. I was lucky to find one doctor doing research on mitochondrial dysfunction. The small improvement I have gotten is because of him. Have you had to deal with doctors pushing back on non FDA approved treatments. If so how did you deal with that. Thank you for encouraging your team to get the word out about CFS and long covid.

Alex Taylor

From a biologist - is there work being done on the fundamental biology of the disease and/or the molecular mechanisms underlying it? What are the research groups involved & where are they based? I would love to read some papers on the topic. Many thanks.

Elisa Granato

Diana since I saw your first video you were an immediate inspiration. You are a beam of light and goodness in a world that needs more people like you. For Drs and Diana: Has this illness affected short or long term memory?

Marco Gutierrez

Q1: From my understanding, our body is designed to move. We feel better and healthier when we move. If we are sick (say, we got a flu), we get fever and our body becomes weak. It sends a signal to us that we shouldn't move around too much and just rest. It's doing that to fight off the disease. But even that, a light movement is still good for recovery. For Dianna, it's the complete opposite. It seems that her body is trying to prevent her from moving or doing anything at all. That seems counter-intuitive. What kind of explanation do we have so far regarding this? (Look! I don't want to make it sound like I know it all and she has to move around despite her condition. Not at all. I'm sure if she can move, she would. I'm very uneducated in this disease. I'm just asking if we have any scientific explanation for that. And I know that not all kind of sickness is better with moving. Say, if our legs are broken, we should rest and let them heal before we move. It's not that moving is bad for health, it's just that the bone needs time to heal.) Q2: I'm a mobile app developer. If I want to build something to help out patients with this illness, what is it that I should build? From what I know, Dianna can't do anything. She can't look at the screen. She can't even read a book. So I have no clue how an app would help. I'm asking because I just want to use technology to help (if possible).

Davuth

Question, "If she could eat her favorite ice cream from back in the day, what flavor and brand would it be?", all the love and look forward to the stream

Alex Newman

What are all the wonderful ways the US Healthcare system has failed you during this journey :)

Toaster

Has Dianna discussed or have made a list of the projects/expiations/events she would like to work on when she is able? if so, could she share a little bit with us?

Donald J Arndt

For the medical professionals: Is there any chance of Stem cell research coming to the rescue with this disease?

David Golden

What's the one thing you look forward to the most now? That makes you smile and/or feel happier inside. After a long battle with depression I found a bench along the seawall of downtown Vancouver, Canada where I live that makes me feel content and relaxed. I'm not sure why, but I knew if I spent any time there it would be a better day ... and I spent so much time there resting "my mind".

Gerald Kichok

No questions from me, I only want to send Dianna my prayers and my thanks and appreciation to those taking care of her and of each other. I look forward to the day, to the MOMENT Dianna regains her strength and veracity for everything! Many thank yous from our family to yours!

Nelson Brake

Even when I am fully healthy, if I lay in bed for a few hours longer than usual I feel like crap much of the day. If I lay in one position too long I get a headache. When I have a flu or something, I feel terrible if I've been confined to my room, but feel much better walking through a park or something, even though I don't want to. I'm not claiming in any sense that these symptoms aren't "real", of course, but I do worry at which point they become kind of self-sustaining? Like a destructive feedback loop, I wonder if there's a tipping point where the outcomes of the symptoms themselves can become dominant causes? I imagine if I wore a fully dark mask for 2 months, the light would hurt my eyes afterwards for a while. And if I was unable to suffer that discomfort, how would I ever recover the ability to see unaided again? Do any of the experts have opinions on this? Is this complete nonsense? I'm sorry if this is complete nonsense, I just worry.

Christopher Vollick

Sounds great. As a fellow LC/CFS person I would love to know what the latest research is from someone I know understands what real science is. Xx

Emily can have fun

Is there anything that we can do to bring you some happiness? I really would like to, whatever it is. Someone mentioned sending individual cards, which is something along the lines of what I' hoping we could do. What would bring you some extra happiness, without tiring you?

Jean-Philippe Suter

What encouragement would you offer to others with long COVID? And do you have advice on how to be supportive of them?

dmi

I hope I am not sounding too harsh with this question but I have been curious ever since I saw Dianna's last video before she contacted Long Covid. Is it possible that she caught this illness from that Arctic expedition, being that she was surrounded by people from around the world in a confined location? Also, have others from that expedition contracted the same illness?

RayRay 711

Is there any progress on discovering why some people are more susceptible to this? Why did it affect her like this? Have you received any hopeful or positive news lately, or seen any improvement at all? You're in all our thoughts, Dianna -- surely this too will pass.

Gregory Storkan

I don’t really have any questions, but I just want to say that my heart really goes out to you two! I remember Dianna’s video on singing into a tube, and how cool that was to see that cross between music and science. You were able to open our eyes to that with your creativity. I keep you two in my prayers, and hope things do get better, and you both have the strength to keep on keeping on…Dianna, you are already handling this better than I ever could…I would be a total crybaby…

chrisroode

My question to Dianna is simple: how did you get this amazing husband? It is already heartbreaking to see you struck down by Long Covid and I hope there will be a cure soon. But I also see all the work Kyle puts into your care and it seems he does it without any bitterness but genuine love. So, where can one find such a great partner?

Christoph S.

How is Diana doing emotionally? Obviously this is grueling and horrible, and when I imagine what she must be going through, it’s hell. My only hope is that the exhaustion tempers some of the emotional toll, is that the case?

Eve Mack

Happy Anniversary to you both

Wendy Foreman

I was wondering if PT of some kind would help with her muscles. I’m sure as long as she has been bed bound she’s lost muscle 💪🏼.

Wendy Foreman

Would cards from her Patreon supporters be of any help for her? Just to let her know we each individually are thinking of her and cheering her on? I wouldn't expect her to read them, but letting her see them and reading a few select ones to her may help bring her a little joy.

JrrCharlotte

Another question: Something that’s given me hope as a chronic illness sufferer was when Jessica Kelgren Fozard said in a video, “sometimes chronic illness just doesn’t get better. Sometimes you’re never going to find a treatment that works or a medicine that cures you. But it’s okay because you will get better AT being sick.” (Or something to that effect.) what are some ways y’all have gotten better at living with Dianna’s illness? What reminds you to not give up hope? Just so you know I genuinely have hope that things will get better for you. Even if she doesn’t get better, she’ll get better at being sick. It’s so important not to give up hope, even in the face of impossible odds. Not in a Pollyanna way but in a punk rock way. You all are incredibly hardcore for living through this. Living in spite of this. You have to live in hope until the very end because that’s the only way you can make space for things to maybe, possibly, someday get better. From one person clutching desperately onto hope for a better future, to another. 💙 I got sick in early 2022. I couldn’t drive, couldn’t walk more than a few steps, could barely eat. I’m still disabled, but I am finally finding treatments that buy me a tiny bit of normalcy every week. Don’t give up. Don’t give up. Don’t give up.

Cyanomys

What are the major impediments to imaging and other diagnostic procedures? What can people do to support individuals with ME/CFS?

Joseph Navarro

Research questions: Do yall feel like research progress on ME/CFS was stalled prior to Covid due to sex discrimination reasons (since it primarily affects women)? Has there been any productive research comparing post-Covid ME/CFS with sleeping sickness after the Spanish flu epidemic? I know migraine, epilepsy, CFS, and fibromyalgia are closely related diseases because they all have to do with CNS sensitivity. Is there any research out there on using migraine treatments for CFS and fibromyalgia? (Obviously though they aren’t even always effective for migraine of course….if they were I wouldn’t be lying in a dark room squinting at my dim phone right now.) As a severe vestibular migraine sufferer who can’t work or do much of anything, I’m not as bad off as Dianna but I feel like I understand a small part of what she’s going through.

Cyanomys

Is there anything we can do? What do you need? Obviously sending all the hugs and prayers and well wishes. Hang in there, we'll beat this thing eventually! Stay Strong!

Carlin Comm

What are some neat physics things Dianna has noticed in her new circumstances that she might not have before? (Also, as with others, How can we help? And thank you to all of her caregivers for doing so much!)

Shad Sterling

Here is my question for the Live Stream: Is the support all the Patreons provide able to cover all the expenses for her treatments and for living expenses for the surrounding team taking care of her? If not, is the OMF team willing to provide the support needed that would be missing for Dianna? I would give much, much more if I could but I hope Dianna and all the team around her are able to benefit from our support. She is so lucky to have people around her who love her and take care of her. I’m sending energy to all involved. Bravo! 😊🫶🏼

FrankLavoy

Here are several questions for Dianna regarding her recovery options, thoughts on leading research therapies, and her current physics musings: Recovery Options 1. Recovery Approaches: "Dianna, what types of recovery methods or treatments are you currently exploring for your ME/CFS, and have you found any particular ones to be more effective?" 2. Support Systems: "How important have support systems (family, friends, medical professionals) been in your journey with ME/CFS, and how have they contributed to your recovery process?" 3. Holistic Treatments: "Have you considered or tried any holistic or alternative treatments, such as acupuncture, meditation, or dietary changes, and what have been your experiences with them?" Leading Research Therapies 4. Cutting-Edge Research: "Are you aware of any cutting-edge research or emerging therapies for ME/CFS that you are particularly excited about or considering participating in?" 5. Clinical Trials: "Have you considered participating in clinical trials for new ME/CFS treatments, and if so, what factors are you weighing in your decision?" 6. Advocacy for Research: "Given your platform, have you thought about advocating for more research funding or awareness for ME/CFS, and how can your community support these efforts?" Physics Interests 7. Current Physics Thoughts: "Despite your health challenges, do you find yourself still pondering physics concepts or theories? If so, what’s been on your mind recently?" 8. Favorite Physics Topics: "What physics topics or experiments are you most passionate about, and how do you see them connecting to your current life experiences?" 9. Science Communication: "Given your unique perspective now, how do you think your experience with ME/CFS might influence your future science communication or the way you engage with your audience on physics topics?" Personal Reflections 10. Balancing Work and Health: "How do you manage to balance your passion for physics and science communication with the demands of managing your health condition?" 11. Inspirational Message: "What message would you like to share with others who are also dealing with chronic illnesses, especially those in the scientific community?" 12. Future Projects: "Do you have any future projects or plans related to physics that you’re looking forward to once you’re feeling better?"

Raphael Garcia

If physics questions are OK? I have one. Can the James Webb telescope see Back to the Big Bang, no matter which way it is pointed? If so, why?

Michael Coolen

Is music helpful or overstimulating for Diana? If she is listening to any music, how about a playlist? :)

Michael Flood

A young fan wants to know: What can I do to help? I really want you to be okay and happy. What is the best thing I can do to help you get better?

lehr

What keeps everyone motivated, wanting to keep going, and choosing to live for tomorrow? I’ve was diagnosed with Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, and a bunch of other things in 2016. I contracted COVID in 2021, after my brother was at work, rode to a job site 10 minutes away with a person, who was asymptomatic of COVID. My brother has a minor cough. my dad had a cough and some congestion. My mom still doesn’t have taste or smell almost 3 years later. Lastly, I spent 2 weeks inpatient, in the COVID ward, and I barely made it out alive. Fast forward to current, and I am exhausted. Just waking up most days is a challenge. I’m in excruciating pain, I can rarely do what I want when I want, and I can’t keep living like this. What keeps you all motivated, and helps quell the thoughts of “I’m wasting space”, “I am wasting resources”, and “what’s the point of lifesaving care, when it’s not doing anything?” I am at a crossroads, and if things don’t start changing in the next 3-6 months, I am going to be entering 2025 with comfort care only and a DNR. I would like to see other’s perspective on difficult times, with chronic illnesses For mental health purposes, I do follow with a therapist, psychiatrist, and they are aware of my struggles. I am not a danger to myself or others. I am working with all kinds of doctors and medical professionals to help try to make things better, but I just keep getting worse.

Allyssa Buthmann

For the panel: The outside world needs to be mobilized around solving this problem, for Dianna's sake as well as everyone else suffering in relative silence today. Where should Dianna's audience focus their energy? Which organizations, public or private, stand to shorten the time horizon for a viable cure, and what exactly is needed? Funding, prioritization, awareness campaigns, all of the above? Kyle and Dianna are doing the best they can just trying to survive and inch toward better health. If there's something we, her community, can put our energy toward to drive real change, please help us understand.

Bob and Mandy

I guess I will ask the question that can't be asked ... Was Diana vaxed or boosted? When did original symptoms start. Are we sure this is because of covid and not the vax/booster. Sorry but ... science can not look away from all possibilities. I know there are many suffering "long covid" but barely a mention in the media. I would appreciate your opinion because I have no first hand information. God bless and heal you Diana.

Joshua C Wilhour

My brother-in-law suffers from the same condition. Also Post COVID, also since 2022. I just want to know everything you know in regards to treatments, studies, what helps, what doesn't. Please stay strong. You are both in my thoughts Dianna and Kyle! ❤️

Judith

Outside of this post, please keep my name anonymous, it's not exactly private I just don't want my name blasted out in the public... When I first got married, my wife fell into a deep depression. We had nothing as we were struggling college students but managed to get her counseling. We tried various mediations, different coping techniques, etc. and her anxiety and depression plagued us for many years. We had all sorts of ups and downs and it has been a huge struggle for her to find a way to function in this world. This week (tomorrow) we celebrate our 30th anniversary and she is doing well, focusing on her health and gradually growing a small business. It has been quite difficult with times things seeming quite bleak which much difficulty keeping our spirits up. I feel it has been our compassion, respect, love and dedication - "for better or worse" that has kept us going and resulted in the improvements and fairly good life we have now. The pain and resolve to overcome has paid off! My question: What advice would you give to those who find themselves in a difficult health crisis while is a young marriage? What has kept you going and given you hope for the future. I truly believe the struggles we have and the persistence we apply pay off. I wish you the best of success now and in the future.

Aaron Bono

i am curious if y'all have tried or talked about the nerve blocker that shows promise at helping long covid. Some propose patients with long COVID are suffering from persistent overactivation of the sympathetic nervous system or inflammation of their nervous system. By injecting local anesthetic and temporarily blocking neuronal activity at the stellate ganglion, we may be disrupting this abnormal feedback loop.

cody heiser

With Dianna being bedridden so long, how do you prevent bed sore?

Roger Phillips

YouTube saves Livestreams as long as they are under 12 hours long (which it appears this barely is). So I would wager yes, but I'm just a random dude so take that with a grain of salt! ☺️

Jared Smith

Two questions from me: 1: My wife suffers from clinical depression and I feel like while the symptoms etc are different, CFS is stigmatized/misunderstood in a similar way ("Just go outside and get some air! Make sure you're eating right!"). How do you deal with this and what can people do to help educate others on it? 2: How are *you* doing, Kyle? We all care about Diana, but is there anything we can do to support you personally to make the days a little lighter?

Jared Smith

TL;DR: is there any momentum or interest, that your panel is aware of, in investigating catalytic antibodies? Thank you for doing this! I'm not sure if this is an appropriate topic or not for any of the specialists you are speaking with but I'm super intrigued by the idea of so-called catalytic antibodies (aka abzymes). As an example, this study shows very early indications that antibodies found in the serum of some COVID patients 7 days after infection were able to "cleave a synthetic ACE2 peptide substrate." The authors hypothesize that this could be a mechanism by which some Long COVID symptoms arise. https://journals.asm.org/doi/epub/10.1128/mbio.00541-24 I find this super intriguing! Though I could see it being too in-the-weeds for this event. In particular, I'm curious if ML could play a role in investigating it similar to the models that fold proteins or investigate novel drugs, and if this mechanism could be responsible for upstream causes of mitochondrial dysfunction.

Michael McIntosh

Michael Jones

Q: What do you do to help Dianna not fully loose her muscle strength while she has to stay in bed. Q: Is there a body of knowledge of this medical condition prior to COVID-19 pandemic or is this all just being researched post-pandemic?

Sergey Chernyshev

What is the one thing that currently gives you the most joy, Dianna?

Lars Schellhas

My partner has mild me/cfs from an EBV infection 15 years ago. Both Dianna and Kyle are always in our thoughts. 🫶 My question for the expert panel is: we know women/afab people are disproportionately likely to be affected by long COVID/post-viral illness. What's the current state of knowledge about this discrepancy? Does it give us any clues about the mechanism of action of these diseases? Thank you for contributing your time and knowledge!

Emily Riddell

The ME/CFS Collaborative Research Center at Stanford University has been doing some very interesting research. The lead is Prof. Ron Davis. It may be worthwhile to reach out, if contact hasn’t already been made.

UnexpectedBooks.com

Unfortunately, I can’t make it to the livestream but I have made a donation through charity navigator. Will the livestream be available to watch afterward? I’d love to know about research and treatment for Diana’s condition. I would also be interested in knowing if the MRI she had recently showed any information that was helpful to her recovery.

Cathy ferguson

If I felt I had a good question I'd love to ask, but I'm sure others will cover anything I could think of... So Good Luck and I'll try to watch and possibly donate... I hope others who have been following this already subscribe to her Patreon... That for me is the best viable method to donate... Coming up with $ on short notice is difficult at best... But we'll see what transpires on that day...

Dale Allen Platt

PS shout out to Dr. Putrino - his team helped me fight my disability insurance carrier and win. 💜 forever indebted

Centralperk

To what extent have OMF and Dianna explored peptide therapy? I’m 4.5yrs severely disabled with long covid, MECFS, pots, light MCAS. 37yo former athlete. I ran out of treatment options and recently started working with the Boulder Longevity Institute, a peptide clinic that has fully recovered people with LC worse off than me (oxygen 24/7, etc). I’m seeing real improvements and want to know if OMF and Dianna are looking into peptide therapy as a possible treatment & cure. Having research support into peptides would be helpful.

Centralperk

I don’t want to be too indiscreet, but that kind of the basic necessity: is she able to stand up and go to the bathroom by herself? I mean, I understand she needs help for a bath once a day, but does Kyle have to carry her on the toilet and back to her bed several times a day?

Martin Le Blanc

Hi Dianna! What do you think about the most? What thoughts appear inside your brain? ❤💙

Mariana Arzuaga

Most pictures I've seen of Diana involve her being in a dark room. My personal experiences, beliefs around Covid had me focused on ensuring I was getting enough natural Vitamin D via Sunlight, then allowing my skin time to absorb it. While taking a multi-vitamin with zinc in it. Thus far I have avoided it successfully. Is all her blood work has vitamin deficiency been evaluated?

IT Ninja

As someone periodically bedridden with long covid, MECFS, pots for 4.5yrs at 37yo… I have this question too re: how do you all approach navigating Covid in a “post covid” world while being this sick, from covid? 💜

Centralperk

How did the MRI go? The dedication of her husband should be acknowledged, I have the greatest respect for the care he is giving. Bless them both.

Alan

What were the early symptoms? I had long COVID for about a month... after recovering from the initial disease (where I was in bed for 4 days), I tried to bounce back quickly and found myself without energy to do anything of really any duration... a 10-minute drive wore me out... lunch with a friend was exhausting... even sitting at my desk for 3-hours was too much. After about a month, it abruptly went away and I was fine. What was Diane's story? Because I was tracking in real time, and it seems that my story was not even close to her story?

Gareth Patterson

Why are certain foods "non-reactive" with the condition while others cause flare-ups? What foods is Dianna currently able to eat?

Claire B

Progress - Decreasing? Improving? Plateaus? How is the collective mental health of Team Dianna?

Suzanne Strickland

What has your experience been like interacting with and informing others about Dianna's condition? I was surprised to see Kyle say in the MRI transport video that he explains it to people as "like a flu and a migraine" because medical transport professionals would likely not know what "she has long covid" means. What has been surprising, frustrating, affirming, etc., when you interact with others?

Aldona Dye

What makes Dianna laugh?

Justin

Should we shave our heads in solidarity?

kurthl33t

Has she ever been tested for Lyme disease? What are crashes, and why do you want to avoid them?

LostRaider

How can physics help find a solution, such as quantum computing? What specific questions are being addressed or ready to be asked when quantum computing is ready to handle them? Who are the leading medical bodies working with quantum computing scientists on ME / CFS?

Stephanie Sullivan

really looking forward to this! i will be watching from my bed. some questions: what non-speaking ways of communicating have been most easeful/effective for dianna? as someone with long covid (and me/cfs, tickborne infections, sibo, and a long list of other conditions), i’m so angered by how most people pretend covid isn’t dangerous anymore and have stopped wearing masks. how does dianna and her care team process the grief of the ongoing yet somewhat forgotten covid pandemic? has dianna been able to engage in any ways with disability community? what routines does dianna look forward to? 💗

Harlow Figa

What would be the first thing she would want to do if she could leave the house again? ❤️🌹

Perry Spangler

Knowing the benefits of sunlight, how many hours a day is she getting in the sun if any? All the pics and videos show her laying in a dark room.

Jerry Long

What scientific event/discovery do you intend to cover, that you missed from the current situation, once you are well again?

Minimag

Thank you! How is she doing mentally, any therapy? And is she getting some sort of physical therapy so her muscle strength stays at a certain level?

Matthias

Has Dianna been able to participate in any clinical trials or longitudinal studies? Are there studies or trials you'd like to see initiated?

Kathy Santos

Are you keeping up with the science news? If so what's the most exciting thing you've heard about?

Jack H Levy

How does Dianna keep her spirits up? How does she handle the uncertainty of her condition?

Jayleigh Lewis

I have lupus and experience post exertion malaise (exercise intolerance, with exercise being general day to day activities). I’ve recently started to track my heart rate and heart rate variability and correlate it with fatigue (measured by how many steps I do in a day). Have you explored this kind of data gathering and if so, has it been helpful? I got the idea from a wearable device that targets those with chronic illness, ME, CFS and long covid specifically, called Visible. I struggle with my inability to predict my energy levels, and the consequences of any particular activities/exertion, so I find I can’t dole out my spoons in the most productive way. I imagine Diana feels this to a much much higher degree.

Megan Umemoto Whittier

This is great!

Rick Estrada

What is the best thing we can do to help loved ones who need full-time care-giving? And what is the best way to support Diana as viewers?

Mary Pittman

Are you able to do mild bed exercises? is enough understood to guess at likely prognosis?

Erica Peterson

This is great! How does Kyle take care of himself and what does he do to make sure he doesn’t burn out ? Is there any tips he has for taking care of loved ones? What does he do to stay positive and sane?

Klara Dvorak

What is being done to treat ME/CFS? What current research is ongoing?

Dremlar

What has been learned about this condition since Dianna started this, and where is the current understanding about recovery and treatment. We all miss seeing Dianna on TV and video and will always continue to support her any way that we can.

Jeremy Fliss

Have you tried any eastern medicine treatments (like acupuncture)? Thank you for educating us. Dianna is constantly in my thoughts.

Patricia

I would like to learn the basics to have a foundation from which to learn more when I read or view other news about ME / CFS. Foundation plus a structure from which to build knowledge from the perspective of a layperson advocate.

Stephanie Sullivan

In the most caring, non-invasive way: how does Dianna go to the bathroom?

Patricia

Yeah for Simone and Raven. 🥰

quietssstorm

No questions I’m just excited to donate to a great charity!!! I’m also excited to see Dianna but only if it’s not too much for her and doesn’t set her back 💕

Merribeth Knigge

Is there anything you can do to pass the time? What do you miss doing the most? We miss you.

Kim

For Dr. Baxter… I have long hoped for you and Dianna to connect, hoping you could help one another. Have you gained anything from connecting with Dianna and do you know if she has benefited from connecting with you?

quietssstorm

As someone who also has an amazing caregiver, what can we do, within our capabilities, to make their caregiving easier?

Neal Tibrewala

Can audio recordings be used for stimulation or recreational interaction? Thx for the info you will be sharing.

Old_ ocean

Agree with the above question, "How can we help?" Please include specific calls to action that are ways that we can help. Thank you.

Stephanie Sullivan

My best wishes to Dianna and her loved ones. My question is: What activities can Dianna do for mental stimulation when stuff as simple as listening to music can become overwhelming? Thanks!

Jose Luis Gochi Contreras

Dianna continues to educate and inform even in the current situation. Brava! The limitations and discomfort looking from the outside seem insurmountable. What things lighten the hardship and bring joy, peace or satisfaction if even in small ways?

Gary Yencich

My biggest worry is if she is suffering from muscle degeneration. What steps do you guys take in her routine to minimize that? You guys are wonderful and angels on earth for what you do for her!

Jorge Cazares

Could this be related at all to idiopathic hypersomnia? Can drugs like sunosi or wakix be of use?

Patrick

details on what is ME/...

Joseph Lapinski

How can we help?

Scott Sackrider

This is great! Will the livestream be recorded?

Todd Seward

No questions, but highly interested!

Dimitri

🥳❤️👍🏿

TwinSteel