(REPOST)
Hello everyone,
Dianna is traveling for the first time in 3 years! The first time on a plane since she got her illness. Dianna is traveling to Alaska, which is one of the last places she went during the Ice X series, before getting Long COVID.
We plan on filming what she is doing up there and updating you all on some potential treatments soon. But right now, we’re happy she landed safe, and isn’t currently crashing too hard. Dianna made it, I(Levi) flew with her. N...
2025-06-17 20:26:21 +0000 UTC
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(Levi typing)
Hello everyone,
Dianna is traveling for the first time in 3 years! The first time on a plane since she got her illness. Dianna is traveling to Alaska, which is one of the last places she went before getting Long COVID. During the Ice X series.
We plan on filming what she is doing up there and updating you all on some potential treatments soon. But right now, we’re happy she landed safe, and isn’t currently crashing too hard. Dianna made it, I(Levi) flew w...
2025-06-15 19:46:30 +0000 UTC
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(Levi typing)
Hi everyone!
Please enjoy this sneak peak of Dianna sharing a little bit of her recent experience being able to look outside again.
Some of this footage will be used in the new health update we will be putting on the channel in the next coming week!
Dianna continues to crash, having ups and downs in this disease. But these days, where she is able to stand up and communicate again, have been priceless! Thank you so much for your contin...
2025-05-19 23:15:47 +0000 UTC
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Hey everyone!
The International Astronomical Union has officially announced that they named an astroid in Dianna’s honor!
Asteroid 21943 Diannacowern
It’s a 9km wide asteroid in the inner main belt. It belongs to the Klio family, a group of objects that have remained largely unchanged since the early days of the solar system.
She is one of four science communicators they believed deserved this special recognition. They emailed us to say they know she’s faced man...
2025-03-19 17:05:44 +0000 UTC
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Thank you all so much for your amazing support. Unfortunately we heard about a scam this weekend and want to make sure everyone knows how to avoid it: only support Dianna here on Patreon or via GoFundMe.
We have contacted facebook (the scammers operate there, sending DMs) and are working to resolve this ASAP. They sometimes operate with the email Diannacowerngirl@gmail.com. This is NOT Dianna's email. They use a doctored photo of a drivers license to convince people it's her - this is ...
2025-01-13 02:39:05 +0000 UTC
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(Levi typing)
You all read it correctly. After years of being too weak to hold herself up, Dianna has the energy to be able to stand! She has been standing once every couple days for about a minute. (Now taking a few days off).
I took this short video commemorate the occasion. Dianna's body has a long way to go, but she said she's so happy to start having her mind back again. Here and there she's able to enjoy some movies, T.V., most of all socializing with the people she loves....
2024-12-18 23:08:02 +0000 UTC
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Hello everyone.
Though Dianna is still in bed, her energy level improvements have allowed her to include more fun things in her life. She was able to try some legitimate Thanksgiving food, and she is able to do embroidery!
Dianna says Merry Christmas and thank you to everyone for all the support. When she is not doing embroidery she has time for playing some Zelda, and listening to a little music. These are things she could not do even just 6 months ago.
Thank you all!
2024-12-10 22:28:49 +0000 UTC
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Dianna's first message to everyone in over 2 years. Her mind is on the mend!
On behalf the team and family here. Thank you guys for supporting us here. Thank you thank you thank you thank you thank you thank you!
2024-11-20 19:46:16 +0000 UTC
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(Levi typing)
Hey everyone, big update in Dianna’s life here.
Dianna moved this week! After almost two years in the same bedroom, she finally felt she had enough resilience to be transported to a new place (and deal with new smells, MCAS, PEM, etc). The recent trips to her procedures helped prove to her that she could get through the journey.
Dianna and Kyle want to express their profound gratitude for making this possible for them. She is resting a lot and is so grateful ...
2024-10-03 23:33:02 +0000 UTC
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WARNING: This video contains footage of a NEEDLE penetrating skin. Please do not watch if you are sensitive to that kind of thing.
We do NOT endorse this procedure. There are risk factors involved . Every long Covid patient is different. Only you and your doctor can decide what is best for you. We only hope this provides valuable information for what Dianna is doing in order to get better.
This is a re-post from last week due to an error in the video.
This month Dianna re...
2024-09-30 22:51:31 +0000 UTC
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It’s been a couple months since the Live-Stream. Dianna is still in bed of course, but she’s hanging in there. She also had a recent procedure which went well! Kyle and I have been working extra hard to keep her on the mend.
*IMPORTANT NOTE*
The following description is for information purposes only, and is not an endorsement of the procedure. The procedure was done under the advice of a highly experienced physician who treats complex disease ...
2024-09-18 21:39:16 +0000 UTC
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Hey everyone! Here is a cut down of all the patreon questions Kyle answered on the Live stream. That way you guy's don't have to sift through 11 hours off footage to find them.
Again, thank you so much for the questions! We wanted to let you know that we're sorry not all questions could have been answered. Kyle got to as many as he could. He said honestly that the questions were so good, he could have filled the whole stream with them. Thank you so much for participating, Kyle said the...
2024-07-10 19:30:46 +0000 UTC
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(Levi typing)
Hey everyone! The Live stream was a huge success! Kyle and Dianna really wanted to thank you guys for the questions you asked here on Patreon. They were very thoughtful and intelligent. Kyle was very thankful at how your questions helped guide the stream.
Thank you so much!
Next, we want to hear about what your favorite moments were! We're hoping to cut and share some of the Live stream's best moments, or most educational moments, for everyone to see. What...
2024-07-09 16:08:18 +0000 UTC
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This Saturday we will be live-streaming a day in Dianna’s life, showing what it’s like for someone suffering from ME/CFS.
We want your questions!
Many of you have a lot of questions about what Dianna is going through, and this is your chance to get those questions answered DURING THE LIVESTREAM! Feel free to ask about anything - her health, her journey, what treatments are available, the latest research, whatever you want. The only thing we will not answer are what specific me...
2024-07-01 17:42:30 +0000 UTC
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Dianna decided to shave her head to make it easier on herself for her journey with long COVID and ME/CFS. Many people struggling with this disease choose to do this if bed-bound for extended periods of time, like Dianna has been.
Hopefully she can avoid crashes, and reduce the amount of energy it takes to wash and maintain her hair every week. Millions of people are suffering from this quiet and deadly disease.
Thank you everyone.
2024-06-28 00:15:28 +0000 UTC
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Hey everyone,
We took some footage of Dianna on the day she had to get her MRI. This is the first time in a year and a half that Dianna has left her apartment. The risk for crashing felt high. She is home now and stable, so all went well. But we wanted to give you guys a look into what Dianna's life is like as a patient with severe ME/CFS.
This is the most active thing Dianna has done since she's been bed-bound in January of 2023. And even here you can see the amount of work an...
2024-06-21 03:04:13 +0000 UTC
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(Levi typing)
Hey everyone,
Here is a time-lapse of one of Dianna's days. This is just a short 1 minute video of what Dianna's day looks like every day. When people hear she is in her room all day, they often think she is watching T.V., reading books, or conversing with friends. The reality of what this disease takes from someone's life is so much worse. It's taken her whole life.
Dianna has been in this room, in this bed for the past year and a half. I mentioned in a previo...
2024-05-31 21:43:17 +0000 UTC
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Hey everyone, (Levi typing)
I'm going to share Kyle's Instagram post from yesterday here. Dianna's birthday was recent and she's been struggling hard lately with the crashes. I'm going to share an update with you guys next week on her current meals and some of the changes being made. I'm happy we're finally able to give her food she enjoys (she says it's the best part of her day). But it's also important to remember the real struggles of what it's like to be in bed for years.
T...
2024-05-10 15:33:37 +0000 UTC
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Dianna - "I know I need to be resting more...but...there's an eclipse!"
We got to help Dianna see the eclipse today. Yes, she had to explain to us how to do it as we cut holes in paper and shined it on the wall. Witnessing an astronomical event with Dianna while she whispered "That's so cool" felt very close to the old days.
We've all been taking it MUCH easier here, slowly, and patiently, allowing Dianna to rest rest rest. Sharing the eclipse with Dianna for a moment of wonder ...
2024-04-09 00:21:42 +0000 UTC
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(Levi typing) Hey everyone, Kyle just posted on Facebook, and I'll link it below.
I don't have a whole lot else to say outside of what Kyle posted. It's still difficult weekly to be honest. But in the recent 2 months I've been able to see Dianna more. A few waves a week, a couple of sentence exchanges back and forth, and the occasional laugh. A few things she's been able to add in her diet have helped the foods taste a little better than bland, so she's been at least enjoying those mor...
2024-04-03 17:30:15 +0000 UTC
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Dianna wrote to you patrons on her pad she communicates with. -
"I meant to answer more questions, but we’ve been trying to expand my diet and I tried salmon. It did not go well…I had a strong MCAS reaction (kind of like allergies). I journaled the symptoms: “Extremely tired, leg and head pains, abdom. cramps, auditory hallucinations, strange thoughts, like half asleep, thoughts in other people’s voices, noise & light bother me.” And then I had symptoms for days afte...
2024-03-12 18:01:32 +0000 UTC
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PATRON - dox - asked: "me and my partner are getting a cat next month, and i would love to get a name suggestion from you!! :D"
Thanks for the questions guys! She'll answer them as often as she can.
2024-02-12 22:11:16 +0000 UTC
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Hey everyone, as you can see from Dianna’s request she feels maybe up for answering a question from patrons every few days! (As a heads up, might be more spaced out than every few days).
She’s looking to answer any and all questions you would have for her. Obviously right now she might not be able to answer some of the deepest questions of our universe, and she won’t be doing any research, but she’d be happy to take a shot at anything you'd like to know.
She’ll answ...
2024-02-08 17:01:13 +0000 UTC
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(Levi, Dianna's editor typing) Kyle sent this to me today. Dianna wanted to thank everyone on Patreon for helping her through this.
I go to Dianna and Kyle's place every week to make some of Dianna meals and help Kyle with anything he needs. I have not spoken to Dianna in a few months due to her being weak. I come in the room, drop off her food, we give each other a little wave, and then I leave.
Summer of 2023, we were definitely speaking with Dianna more. I felt like I was able ...
2024-01-26 21:34:00 +0000 UTC
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(From Kyle, Dianna's husband)
Huge thanks to Destin from Smarter Everyday for making a great video about Dianna’s journey, and his visit to see us earlier this year. I hope you all had a chance to watch it here [https://youtu.be/xbcjf-hrOAs]
As most of you know, Dianna has been diagnosed with ME/CFS and Long Covid (which many - but not all - experts agr...
2023-12-21 21:17:18 +0000 UTC
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Hey everyone, this video was taken this past week of Dianna cutting her hair again. Dianna still hasn’t gotten out of bed and it’s been long enough that her hair has grown out again.
Health Update —
For the past 2 or more months, Dianna has been dealing with a very heavy crash. As we know, these crashes keep her physically restricted, but equally as painful is the brain fog she experiences from the mental fatigue. From what we understand working with her doctor, these crashe...
2023-11-28 22:23:26 +0000 UTC
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Hello everyone,
Small update on Dianna. Her crash extended for a fairly long time and there hasn’t been any significant improvements in the last few months. It’s been a roller coaster of her making small gains, and then having set backs. It’s been difficult and discouraging. But her doctor and others are working hard to help her combat the disease. Unfortunately the news is that she still can’t get out of bed or do any mindful activity. At this point she is resting diligently an...
2023-10-12 22:30:33 +0000 UTC
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Hello everyone! This is something fun Dianna wanted me to share with you guys. Years ago we did a video visiting the Antimatter factory at CERN and Elise had discussed how they try to test and see how antimatter reacts to gravity.
And just a few years later, physicists confirmed the theory! Read about it here - https://www.nature.com/articles/d41586-023-03043-0
The video above is the moment ...
2023-10-02 22:38:26 +0000 UTC
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Dianna recorded her and the team coming up with title and thumbnail ideas for the video about Time Crystals. Dianna loved open brainstorming sessions around coming up with titles for videos. She started recording this one because we were having fun, and she always wanted to share more parts of her process with her followers.
In this specific instance Dianna was laughing really hard and clearly enjoyed teasing Kyle about his ideas. I think this video is funny, but also an insight into ho...
2023-09-21 19:57:31 +0000 UTC
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Because a lot of you pointed out Dianna's singing in a recent post, she wanted to share with you guys that it's always been a passion of hers. Dianna's mom dug this video up of Dianna at age 17(half her age now, 34) singing and playing the piano. She wanted to share it here with you guys.
Small Health Update - Dianna has been coming out of a crash for the past few weeks. She thinks this crash has set back her recovery by months. She still looks better than she used to, but the crash fr...
2023-08-31 23:05:55 +0000 UTC
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